| Resources
Patient Support Groups
Front Range Kidney Patients' Association
General information and meet other dialysis patients. For information contact George Bravdica @ 303-934-0077
Caregiver Support Groups
DaVita of East Aurora
DaVita of East Aurora has a CareGiver's Group focused on helping family members and caregivers to deal with the feelings an issues associated with End Stage Renal Disease.
The members of the group deal with issues of caregiving with chronic disease and find a great deal of relief in not being alone in the experience.
For more information please call Patricia Steffes @ 303-696-1137
Internet Support Groups
Kidney Disease Chat Room
Chat rooms allow you to send text messages - "chat" - in real time with people across the globe. An active chat room
for people with kidney disease is www.dialyze.org/chat/ Chat rooms are a fun way to meet people but the
conversation often strays far from the topic of kidney disease.
Yahoo Groups: Dialysis_Support
An excellent Internet kidney resource is a Yahoo group called Dialysis_Support, located at
health.groups.yahoo.com/group/dialysis_support/ or simply find the group by searching for "Dialyis_Support" through a search engine, don't forget the "_" and the
search engine will find the group every time.
Helpful Readings
Dying to Live by Gaea Shaw
The book vividly describes Shaw's sudden and unexpected decline in health, which took her to the brink of death,
and the heart transplant that brought her back to vibrant life. She describes her shift from a fearful, constricted
woman with a lifetime habit of worry into a person filled with gratitude, courage, and trust
Gaea has competed in numerouse U.S. Transplant Games as a member of Team Rocky Mountain and she has also attended several
International Transplant Games as a member of Team USA. |
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| Click here to visit Gaea's website | Click here to read a review of her book
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Laughter in the Wind by Donna Trunz
This beautifully illustrated story of a young butterfly named Bernadette goes beyond the traditional symbolism of metamorphosis, allowing the reader to share Bernadette's transition from the physical world and follow her into the spiritual realm. It is a lighthearted tale of a world beyond this existence that provides comfort
for those preparing to depart this world and delivers a message of hope for those left behind. |
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Last Act of Kindness by JaNel Farnsworth
A Read 'N' Color Book with a touching true story about a young girl waiting for a kidney transplant.
It will help children understand that they are not alone. Also the importance of Donor Awareness. |
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NKF Store
Donate Life Bracelets |  |
Please call 720-748-9991 for ordering information |
Silver Kidney Jewelery
Silver chain necklaces with a silver kidney and kidney-shaped earring are available.
Please call 720-748-9991 for ordering information
Resource Links
The following web sites contain helpful information regarding kidney
disease and its related diseases.
American Association of Kidney Patients
www.aakp.org
The American Association of Kidney Patients exists to serve the needs and interests of all kidney patients and
their families. Founded in 1969 by kidney patients, for kidney patients, its purpose is to help patients and
their families cope with the emotional, physical and social impact of kidney disease leading to more normal,
productive and satisfying lives. AAKP is your lifeline to other kidney patients.
American Association of Kidney Patients
3505 E Frontage Road #315
Tampa, FL 33607
phone: 800-749-2257
email: info@aakp.org
American Diabetes Association
www.diabetes.org
Phone: 720-855-1102
The American Diabetes Association is the nation's leading nonprofit
health organization providing diabetes research, information and
advocacy.
American Heart Association
www.americanheart.org
Information regarding high blood pressure and heart disease, and its effects on your kidneys.
American Kidney Fund
www.kidneyfund.org
Phone: 1-800-638-8299
The American Kidney Fund is a non-profit, national, voluntary health organization providing direct financial
assistance to thousands of Americans who suffer from kidney disease. Since its inception in 1971, the AKF has
served as the primary non-government funding source for kidney patients in need of assistance. In addition to the
direct financial aid program, the Fund provides services through its community services, public and professional education,
kidney donor development and research programs. These activities are made possible through the generosity and continued support
of the general public.
American Transplant Foundation
410 17th Street 22nd Floor
Denver, CO 80202
Executive Director: Heidi Heltzel
Phone: 303-757-0959
www.americantransplantfoundation.org
Donor Alliance
www.donoralliance.org
Phone: 303-329-4747
Donor Awareness Council
www.donor-awareness.org
Phone: 303-388-8605
End Stage Renal Disease Networks
www.esrdnetworks.org
The ESRD Networks provide a cost effective mechanism to ensure the most efficient use of Medicare dollars for dialysis treatment and kidney transplantation through monitoring quality of care indicators and maintaining timely, complete data on the ESRD program.
Phone: 303-831-8818
National Kidney Foundation
www.kidney.org
By far the most comprehensive web site for kidney disease information.
Phone: 1-800-622-9010
National Kidney Disease Education Program
www.nkdep.nih.gov
NKDEP is a program of the National Institutes of Health to reduce the deaths and disabilities from kidney disease and its complications.
The National Institute of Diabetes and Digestive and Kidney Diseases
www.niddk.nih.gov/health/kidney/kidney.htm
The National Institute of Diabetes and Digestive and Kidney Diseases conducts and supports research on many of the most serious diseases affecting public health. In addition, they are a great source of information for the general public and health professionals.
National Organ Procurement and Transplantation
Network (OPTN)
www.optn.org
OPTN is a national computer registry system where donor organs are matched to waiting recipients.
The Nephron Information Center
www.nephron.com
Nephrons are the cells in your kidney. The Nephron Information Center is a dynamic site designed as a tool to help the public, the patient and the physician advance their knowledge and better understand kidney disease.
If you have links that you believe should be included here,
please email us.
Thank you,
NKF's CMW Team
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